Learning disability
Epilepsy and Intellectual Disability
Epilepsy is more common in people with a learning disability. Around 1 in 3 people (32%) who have a mild to moderate learning disability also have epilepsy. The Epilepsy and Intellectual Disability Specialist Service is available for adults living in Nottingham and Nottinghamshire who have a diagnosed learning disability and epilepsy. More information about the Epilepsy Specialist service can be found on Nottinghamshire Healthcare NHS Foundation Trust’s website.
Epilepsy Films and Books
The Epilepsy and Intellectual Disability Specialist Service have created a series of videos and information sheets:
- About our service – Epilepsy and Intellectual Disability Service: Video | Information PDF
- Living Well with Epilepsy: Video | Information PDF
- Transition into Adults Services: Video | Information PDF
- Having an EEG: Video | Information PDF
- Having Video Telemetry: Video | Information PDF
- Having Vagal Nerve Stimulator Surgery: Video | Information PDF
- Having an MRI: Video | Information PDF
Useful information
- Information about Epilepsy
- Information about what to do when someone has a seizure
- Information about reducing seizure related risks
- Easy read information about reducing epilepsy risks
- Clive Treacey Independent Review
Annual health checks
Annual health checks are for people aged 14 and over who have a Learning Disability. A health check once a year gives people time to talk about anything that is worrying them and means they can get used to going to visit the doctor.
Find out more about annual health checks on the NHS England website. This includes information on who’s eligible, how it will help, how to get an appointment, and what happens during the health check. You can also read this leaflet about annual health checks for young people with learning disabilities.
LeDeR programme
The LeDeR programme (learning from the lives and deaths of people with learning disabilities and autism) was established in 2017 to support local areas across England to review the deaths of people with a learning disability, to learn from those deaths and to put that learning into practice.
Reporting the death of someone with a Learning Disability or an Autistic Person.
Anyone can report a death of someone who had a Learning Disability or who was Autistic aged 18 or over by completing this online form.
To report the death of a child or young person under 18 years of age please visit Child death reviews: forms for reporting child deaths – GOV.UK.
You can find the 2023/2024 Nottingham and Nottinghamshire ICB LeDer Annual Report on the Learning from the lives and deaths of people with learning disabilities and autism page.
My Health Vision
A series of short films about healthcare made for people with a learning disability – view the MyHealthVision channel.
