Top tips from people with lived experience

These tips are for people thinking about getting involved in meetings, groups, or co-production work.

Think about what matters to you and why you want to take part. Choose a topic you are interested in.

Be realistic about how much time and energy you have. Make sure it fits with your life.

You do not have to speak in the first few meetings. Listening is fine.

Many people feel nervous, intimidated, or like they don’t belong at first. This usually improves with time.

Your experiences and skills matter. Everyone brings something different.

You may want to think about one thing you would like to say. Sometimes there isn’t time to say everything, and that’s okay.

Meetings often use acronyms and unfamiliar words. It’s okay to ask what things mean.

Co-production needs commitment and patience. Things may feel slow, but progress does happen.

Having two people involved can help. You can support each other and talk things through afterwards.

You decide how much to share about your experience. Some information discussed in meetings may be confidential.

Meetings can be tiring or emotional. Only attend and share when you feel able to.

Working together is powerful. You are not alone, and your voice can help make a difference.